Bibliography

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Challenges of Caregiving

Caregiver Stress

  • AARP.org. (2011). Caregiving Resource Center: 10 Ways to Deal with Caregiver Stress. Retrieved from www.aarp.org/relationships/caregiving/info-06-2010/crc-10-caregiver-stre... on June 27, 2012.
  • Given, B. & Sherwood, P.R. (2006). Family Care for the Older Person Who Has Cancer. Seminars in oncology nursing, 22(1), 43-50.
  • Mayo Clinic. (2012). Caregiver Stress: Tips for Taking Care of Yourself. Retrieved from www.mayoclinic.com/health/caregiver-stress/MY01231 on June 27, 2012.
  • Schumacher, K.L., Beidler, S.M., Beeber, A.S., Gambino, P. (2006). A Transactional Model of Cancer Family Caregiving Skill. Advances in Nursing Science, 29 (3), 271-286.

Caregiver Overload

  • Health Plan of New York & National Alliance for Caregiving (2005). Care for the Family Caregiver: A Place to Start. The White House Conference on Aging December 2005. Mills
  • J. & Aubeeluck, A. (2006). Nurses' Experiences of Caring for Their Own Family Members. Health journal of nursing, 15(3), 160-165.
  • Random House (2005). Webster's unabridged dictionary. Random House: United States.
  • Schumacher, K., Beck, C.A. & Marren, J.M. (2006). Family Caregivers: Caring for Older Adults, Working with Their Families. American Journal of Nursing, 106(8), 40-49.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.

Getting Help

Getting Help with Caregiving

Making a Caregiving Plan


Taking Care of You

Avoiding Substance Abuse

  • AARP.org (2012). Caregiving Resource Center: Caring for Yourself During Caregiving. Retrieved from www.aarp.org/home-family/caregiving/info-05-2012/caring-for-yourself-dur... on June 27, 2012.
  • Health Plan of New York & National Alliance for Caregiving (2005). Care for the Family Caregiver: A Place to Start. The White House Conference on Aging December 2005. Mills
  • Northouse, L., Williams, A. L., Given, B., & McCorkle, R. (2012). Psychosocial Care for Family Caregivers of Patients with Cancer. Journal of Clinical Oncology, 30(11), 1227-34.
  • Schumacher, K., Beck, C.A. & Marren, J.M. (2006). Family Caregivers: Caring for Older Adults, Working with Their Families. American Journal of Nursing, 106(8), 40-49.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.

Eating Well

  • National Health Information Center (2009). Retrieved from www.healthfinder.gov on June 3, 2009.
  • O'Brien, T. (2006). The Stress of Family Caregiving: Your Health May Be at Risk. Take Care! Caregiver Action Network.
  • United States Department of Agriculture (2010). Dietary Guidelines for Americans. Retrieved from health.gov/dietaryguidelines/dga2010/DietaryGuidelines2010.pdf. on June 27, 2012.
  • United States Department of Agriculture. (2006). Your Personal Path to Health: Steps to a Healthier You! Retrieved from www.choosemyplate.gov/food-groups/downloads/resource/MyPyramidBrochureby... on June 27, 2012.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.
  • Weight-control Information Network. (2008). Energize Yourself and Your Family. Retrieved from win.niddk.nih.gov/publications/energize.htm on June 27, 2012.

Getting Exercise

  • Kitrungrote, L. & Cohen, M.Z. (2006). Quality of Life a Family Caregivers of Patients with Cancer: A Literature Review. Oncology Nursing Forum, 33(3), 625-632.
  • National Institutes of Health. (2009). News in Health: Get Moving and Stay Healthy. Retrieved from newsinhealth.nih.gov/2009/April/feature1.htm on June 27, 2012.
  • O'Brien, T. (2006). The Stress of Family Caregiving: Your Health May Be at Risk. Take Care! Retrieved from Caregiver Action Network on June 29, 2012.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.
  • U.S. Department of Health and Human Services. (2008). Physical Activity Guidelines for Americans. Retrieved from www.health.gov/PAGuidelines/guidelines/default.aspx#toc on June 27, 2012.
  • U.S. Department of Health and Human Services (2009). Retrieved from www.healthfinder.gov on June 29, 2012.
  • Weight-control Information Network. (2009). Tips to Help You Get Active. Retrieved from win.niddk.nih.gov/publications/tips.htm on June 27, 2012.

Staying Healthy

  • Agency for Healthcare Research and Quality (2006). The Guide to Clinical Preventive Services. Recommendations of the U.S. Preventive Services Task Force. AHRQ.
  • Centers for Disease Control and Prevention. (2011). Staying Healthy. Retrieved from www.cdc.gov/HealthyLiving on June 27, 2012.
  • O'Brien, T. (2006). The Stress of Family Caregiving: Your Health May Be at Risk. Take Care! Caregiver Action Network. Retrieved from: www.thefamilycaregiver.org/pdfs/CaregiverStress.pdf on June 29, 2012.
  • U.S. Department of Health and Human Services. Prevention. Retrieved from www.hhs.gov/safety/index.html on June 27, 2012.
  • U.S. Department of Health and Human Services. (2012). Quick Guide to Healthy Living. Retrieved from www.healthfinder.gov/prevention on June 27, 2012.

Working Together

Talking with Family & Friends

  • American Cancer Society. (2011). Listen with Your Heart: Talking with the Person Who Has Cancer. Retrieved from www.cancer.org/Treatment/UnderstandingYourDiagnosis/TalkingaboutCancer/L... on June 27, 2012.
  • National Cancer Institute. (2011). Communication in Cancer Care. Retrieved from cancer.gov/cancertopics/pdq/supportivecare/communication/patient on June 27, 2012.
  • Nigolian, C. J., & Miller, K. L. (2011). Teaching Essential Skills to Family Caregivers. American Journal of Nursing, 111(11), 52-58.
  • Thorne, S., Oliffe, J. L., & Stajduhar, K. I. (2012). Communicating Shared Decision-Making: Cancer Patient Perspectives. Patient Education and Counseling. DOI: 10.1016/j.pec.2012.02.018.
  • Whitlach, C. (2008). Informal Caregivers' Communication and Decision Making. American Journal of Nursing, 108(9), 73-77.

Talking with Healthcare Providers

Family Meetings

Helping from a Distance

  • Berger, L. (2009). Long-Distance Caregiving: A Growing Phenomenon. Today's Caregiver, 30-32.
  • Bevan, J. L., & Sparks, L. (2011). Communication in the Context of Long-Distance Family Caregiving: An Integrated Review and Practical Applications. Patient Education and Counseling, 85(1), 26-30.
  • Bradley, J. (2011). Long-Distance Caregiving: Assessing Needs. Today's Caregiver, 24-27.
  • Lewis L. (2008). Long-Distance Caregiving. Am J Nurs. 108(9 Suppl):49. PMID: 18797227.
  • Yedidia MJ, Tiedemann A. (2008) How Do Family Caregivers Describe Their Needs for Professional Help? Am J Nurs. 108(9 Suppl):35-7. PMID: 18797222.
  • Caring from a Distance (www.cfad.org)
  • Caring for Aging Parents (www.caring.com/)

Making Things Happen

Medication Management

Money

  • AARP.org. Caregiving Resource Center: Sources of Financial Help. Retrieved from www.aarp.org/relationships/caregiving-resource-center/info-08-2010/lfm-s... on June 27, 2012.
  • Ask Medicare. Tips and Resources for Caregivers. Is Additional Financial Support Available? Retrieved from www.medicare.gov/caregivers/SharedResources/shared/pdf/CMS_FinancialSupp... on June 28, 2012.
  • Cancer Care (2007). Financial Help for People with Cancer. Cancer Care Assist.
  • National Cancer Institute (2007). Financial Assistance and Other Resources for People with Cancer. National Cancer Institute.
  • Health Plan of New York & National Alliance for Caregiving (2005). Care for the Family Caregiver: A Place to Start. The White House Conference on Aging December 2005.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.

Work

  • AARP.org (2010). Balancing Work and Caregiving. Retrieved from www.aarp.org/relationships/caregiving-resource-center/info-08-2010/pc_ba... on June 28, 2012.
  • Gordon, J. R., Pruchno, R. A., Wilson-Genderson, M., Murphy, W. M., & Rose, M. (2012). Balancing Caregiving and Work: Role Conflict & Role Strain Dynamics. Journal of Family Issues, 33(5), 662-689.
  • McDaniel, K. R, & Allen, D. G. (2012). Working and Caregiving: The Impact on Caregiver Stress, Family-Work Conflict, & Burnout. Journal of Life Care Planning, 10(4), 21-32.
  • Neal, M.B. & Wagner, D.L. (n.d.) Issues, Challenges, and Opportunities for the Aging Network. Retrieved from www.caregiverslibrary.org/Portals/0/Working%20Caregivers%20-%20Issues%20... on June 29, 2012.
  • Teschendorf, B., Schwartz, C., Ferrans, C. E., O'Mara, A., Novotny, P., & Sloan, J. (2007). Caregiver Role Stress: When Families Become Providers. Cancer Control, 14(2), 183-189.

Transportation

Emergency Preparedness


Coping with Caregiving

Anger

  • Gold, Marla. When Your Loved One Isn't Very Lovable. Retrieved from www.thefamilycaregiver.org/pdfs/LovedOneIsNotLovable.pdf on June 29, 2012.
  • Macneil, G., Kosberg, J. I., Durkin, D. W., Dooley, W. K., Decoster, J., & Williams, G. M. (2010). Caregiver Mental Health and Potentially Harmful Caregiving Behavior: The Central Role of Caregiver Anger. Gerontologist, 50(1), 76-86.
  • U.S. Department of Health and Human Resources (2005). Support for Caregivers: When Someone You Love Is Being Treated for Cancer. National Institutes of Health.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.
  • Washington State Department of Social and Health Services (2006). Your Mental Health. National Caregivers Library. (www.caregiverslibrary.org/)

Anxiety

  • American Cancer Society (www.cancer.org)
  • Eaton, L.H. & Tipton, J.M. (2009). Anxiety. In L.H. Eaton & J.M. Tipton (Eds.). Putting Evidence into Practice: Improving Oncology Patient Outcomes (pp. 25-36). Pittsburg: Oncology Nursing Society.
  • Lambert, S. D., Girgis, A., Lecathelinais, C., & Stacey, F. (2012). Walking a Mile in Their Shoes: Anxiety and Depression Among Partners and Caregivers of Cancer Survivors at 6 and 12 Months Post-Diagnosis. Supportive Care in Cancer. DOI: 10.1007/s00520-012-1495-7.
  • Madden, J. (2006). The Problem of Distress in Patients with Cancer: More Effective Assessment. Clinical Journal Of Oncology Nursing, 10, 615-619.
  • National Cancer Institute. (www.cancer.gov)
  • National Coalition of Cancer Survivorship. (canceradvocacy.org)
  • Sheldon, L.K., Swanson, S., Dolce, A., Marsh, K. & Summers, J. (2008). Putting Evidence Into Practice: Evidence-Based Interventions for Anxiety. Clinical Journal of Oncology Nursing, 12(5), 789-797.

Depression

  • Eaton, L.H. & Tipton, J.M. (2009). Depression. In L.H. Eaton & J.M. Tipton (Eds.), Putting Evidence Into Practice: Improving Oncology Patient Outcomes (pp. 105-118). Pittsburg: Oncology Nursing Society.
  • Fulcher, C. (2006). Depression Management During Cancer Treatment. Oncology Nursing Forum, (33) 1, 33-35.
  • Given, B. & Sherwood, P.R. (2006). Family Care for the Older Person Who Has Cancer. Seminars in Oncology Nursing, 22(1), 43-50.
  • Mittelman, M. (2005). Taking Care of the Caregivers. Current OpinionPsychiatry, 18(6), 633-639.
  • Heidari, G. M., Bouzar, Z., Haghshenas, M., Kasaeeyan, A. A., Sadeghi, M. R., & Didehdar, A. M. (2012). Quality of Life and Depression in Caregivers of Patients with Breast Cancer. BMC Research Notes, 5(11), 310.
  • Mittelman, M. (2005). Taking Care of the Caregivers. Current Opinion Psychiatry, 18(6), 633-639.
  • National Cancer Institute. (www.cancer.gov)
  • National Coalition of Cancer Survivorship. (www.canceradvocacy.org)
  • O'Brien, T. (2006). The Stress of Family Caregiving: Your Health May Be at Risk. Take Care! Caregiver Action Network. Retrieved from www.thefamilycaregiver.org/pdfs/CaregiverStress.pdf on July 2, 2012.
  • Schumacher, K., Beck, C.A. & Marren, J.M. (2006). Family Caregivers: Caring for Older Adults, Working with Their Families. American Journal of Nursing, 106(8), 40-49.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.
  • Van Fleet, S. (2006). Assessment and Pharmacotherapy of Depression. Clinical Journal of Oncology Nursing, (10) 2, 158-161.

Fatigue

  • American Society of Clinical Oncology (2008). Making a World of Difference in Cancer Care. Retrieved from: www.plwc.org.
  • Beck, S., Dudley, W., & Barsevick, A. (2005). Pain, Sleep Disturbance, and Fatigue in Patients with Cancer: Using a Mediation Model to Test a Symptom Cluster. Oncology Nursing Forum, 32(3), E48-E55.
  • Dwyer, K. (2007). Fighting Caregiver Fatigue. Caregiver.com: Today's Caregiver magazine.
  • Mitchell, S.A., Beck, S.L., Hood, L.E., Moore, K. & Tanner, E.R. (2007). Putting Evidence into Practice: Evidence-Based Interventions for Tatigue During and Following Cancer and Its Treatment. Clinical Journal of Oncology Nursing, 11(1), 99-113.
  • National Cancer Institute. (2012). Fatigue (PDQ). Retrieved from www.cancer.gov/cancertopics/pdq/supportivecare/fatigue/HealthProfessional.
  • National Coalition for Cancer Survivorship. Fatigue At: www.canceradvocacy.org. Click On Essential Care.    

Fear & Uncertainty

  • Clayton, M.F., Mishel, M.H. & Belyea, M. (2006). Testing a Model of Symptoms, Communication, Uncertainty, and Well-Being, in Older Breast Cancer Survivors. Research in Nursing & Health, 29, 18-39.
  • Gil, K., Mishel, M., Germino, B., Porter, L., Laney, I. & Belyea, M. (2005). Uncertainty Management Intervention for Older African American and Caucasian Long-Term Breast Cancer Survivors. Journal of Psychosocial Oncology, 23, 3-21.
  • Herbert, R. S., Schulz, R., Valire, C. C., & Arnold, R. M. (2009). Preparing Family Caregivers for Death and Bereavement. Insights From Caregivers of Terminally Ill Patients. Journal of Pain and Symptom Management, 37(1), 3-12.
  • Lower Mainland Assessment & Referral Service (n.d.). Dealing with Life Uncertainty: Seven Strategies for Success. Lower Mainland Assessment & Referral Service (EFAP/ARS). Retrieved from www.lmars.com/strategies_for_success.htm on June 29, 2012.
  • Mishel, M. H., Germino, B. B., Gil, K. M., Belvea, M., LaNev, I. C., Stewart, J., et al. (2005). Benefits from an Uncertainty Management Intervention for African-American and Caucasian Older Long-Term Breast Cancer Survivors. Psycho-Oncology, 14(11), 962-978.

Loneliness & Isolation

  • AARP.org. (2012). Caregiving Resource Center: Caring for Yourself During Caregiving. Retrieved from www.aarp.org/home-family/caregiving/info-05-2012/caring-for-yourself-dur... on June 28, 2012.
  • National Cancer Institute. (2011). Caring for the Caregiver: Caring for Yourself. Retrieved from cancer.gov/cancertopics/coping/caring-for-the-caregiver/page4 on June 28, 2012.
  • Net of Care (n.d.) Your Needs: Social Needs. Net of Care. Retrieved from www.netofcare.org/content/your_needs/social_needs.asp on July 2, 2012.
  • Robinson, J., Fortinsky, R., Kleppinger, A., Shugrue, N., & Porter, M. (2009). A Broader View of Family Caregiving: Effects of Caregiving and Caregiver Conditions on Depressive Symptoms, Heath, Work, and Social isolation. Journals of Gerontology Series B: Psychological Sciences & Social Sciences, 64B(6), 788-798.

Sleep Problems

  • Berger, A., Parker, K., Mccaughan, S., Mallory, G., Barsevidk, A., & Beck, S., et al. (2005). Sleep/Wake Disturbance in People with Cancer and Their Caregivers: State of the Science. Oncology Nursing Forum, 32(6), 98-126.
  • Carter, P.A., & Clark, A. P. (2005). Assessing and Treating Sleep Problems in Family Caregivers of Intensive Care Unit Patients. Critical Care Nurse, 25(1), 16-25.
  • Carter, P. A. (2006). A Brief Behavioral Sleep Intervention for Family Caregivers of Persons with Cancer. Cancer Nursing, 29(2), 95-103.
  • Eaton LH & Tipton JM. (2009). Sleep-Wake Disturbances. In LH Eaton & JM Tipton (Eds), Putting Evidence Into Practice: Improving Oncology Patient Outcomes (pp. 285-297). Pittsburgh: Oncology Nursing Society.
  • Garci, G. (2005). Pathogenesis and Management of Cancer-Related Insomnia. Journal of Supportive Oncology, 3(5), 349-358.
  • Kvale, E. & Shuster, J. (2006). Sleep Disturbance in Supportive Cancer Care: A Review. Journal of Palliative Medicine, 9(2), 437-450.