Bibliography

Challenges of Caregiving

Caregiver Stress

  • AARP.org. (2011). Caregiving Resource Center: 10 Ways to Deal with Caregiver Stress. Retrieved from www.aarp.org/relationships/caregiving/info-06-2010/crc-10-caregiver-stre... on June 27, 2012.
  • Given, B. & Sherwood, P.R. (2006). Family Care for the Older Person Who Has Cancer. Seminars in oncology nursing, 22(1), 43-50.
  • Mayo Clinic. (2012). Caregiver Stress: Tips for Taking Care of Yourself. Retrieved from www.mayoclinic.com/health/caregiver-stress/MY01231 on June 27, 2012.
  • Schumacher, K.L., Beidler, S.M., Beeber, A.S., Gambino, P. (2006). A Transactional Model of Cancer Family Caregiving Skill. Advances in Nursing Science, 29 (3), 271-286.

Caregiver Overload

  • Health Plan of New York & National Alliance for Caregiving (2005). Care for the Family Caregiver: A Place to Start. The White House Conference on Aging December 2005. Mills
  • J. & Aubeeluck, A. (2006). Nurses' Experiences of Caring for Their Own Family Members. Health journal of nursing, 15(3), 160-165.
  • Random House (2005). Webster's unabridged dictionary. Random House: United States.
  • Schumacher, K., Beck, C.A. & Marren, J.M. (2006). Family Caregivers: Caring for Older Adults, Working with Their Families. American Journal of Nursing, 106(8), 40-49.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.

Getting Help

Getting Help with Caregiving

Making a Caregiving Plan

Taking Care of You

Avoiding Substance Abuse

  • AARP.org (2012). Caregiving Resource Center: Caring for Yourself During Caregiving. Retrieved from www.aarp.org/home-family/caregiving/info-05-2012/caring-for-yourself-dur... on June 27, 2012.
  • Health Plan of New York & National Alliance for Caregiving (2005). Care for the Family Caregiver: A Place to Start. The White House Conference on Aging December 2005. Mills
  • Northouse, L., Williams, A. L., Given, B., & McCorkle, R. (2012). Psychosocial Care for Family Caregivers of Patients with Cancer. Journal of Clinical Oncology, 30(11), 1227-34.
  • Schumacher, K., Beck, C.A. & Marren, J.M. (2006). Family Caregivers: Caring for Older Adults, Working with Their Families. American Journal of Nursing, 106(8), 40-49.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.

Eating Well

  • National Health Information Center (2009). Retrieved from www.healthfinder.gov on June 3, 2009.
  • O'Brien, T. (2006). The Stress of Family Caregiving: Your Health May Be at Risk. Take Care! Caregiver Action Network.
  • United States Department of Agriculture (2010). Dietary Guidelines for Americans. Retrieved from health.gov/dietaryguidelines/dga2010/DietaryGuidelines2010.pdf. on June 27, 2012.
  • United States Department of Agriculture. (2006). Your Personal Path to Health: Steps to a Healthier You! Retrieved from www.choosemyplate.gov/food-groups/downloads/resource/MyPyramidBrochureby... on June 27, 2012.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.
  • Weight-control Information Network. (2008). Energize Yourself and Your Family. Retrieved from win.niddk.nih.gov/publications/energize.htm on June 27, 2012.

Getting Exercise

  • Kitrungrote, L. & Cohen, M.Z. (2006). Quality of Life a Family Caregivers of Patients with Cancer: A Literature Review. Oncology Nursing Forum, 33(3), 625-632.
  • National Institutes of Health. (2009). News in Health: Get Moving and Stay Healthy. Retrieved from newsinhealth.nih.gov/2009/April/feature1.htm on June 27, 2012.
  • O'Brien, T. (2006). The Stress of Family Caregiving: Your Health May Be at Risk. Take Care! Retrieved from Caregiver Action Network on June 29, 2012.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.
  • U.S. Department of Health and Human Services. (2008). Physical Activity Guidelines for Americans. Retrieved from www.health.gov/PAGuidelines/guidelines/default.aspx#toc on June 27, 2012.
  • U.S. Department of Health and Human Services (2009). Retrieved from www.healthfinder.gov on June 29, 2012.
  • Weight-control Information Network. (2009). Tips to Help You Get Active. Retrieved from win.niddk.nih.gov/publications/tips.htm on June 27, 2012.

Staying Healthy

  • Agency for Healthcare Research and Quality (2006). The Guide to Clinical Preventive Services. Recommendations of the U.S. Preventive Services Task Force. AHRQ.
  • Centers for Disease Control and Prevention. (2011). Staying Healthy. Retrieved from www.cdc.gov/HealthyLiving on June 27, 2012.
  • O'Brien, T. (2006). The Stress of Family Caregiving: Your Health May Be at Risk. Take Care! Caregiver Action Network. Retrieved from: www.thefamilycaregiver.org/pdfs/CaregiverStress.pdf on June 29, 2012.
  • U.S. Department of Health and Human Services. Prevention. Retrieved from www.hhs.gov/safety/index.html on June 27, 2012.
  • U.S. Department of Health and Human Services. (2012). Quick Guide to Healthy Living. Retrieved from www.healthfinder.gov/prevention on June 27, 2012.

Working Together

Talking with Family & Friends

  • American Cancer Society. (2011). Listen with Your Heart: Talking with the Person Who Has Cancer. Retrieved from www.cancer.org/Treatment/UnderstandingYourDiagnosis/TalkingaboutCancer/L... on June 27, 2012.
  • National Cancer Institute. (2011). Communication in Cancer Care. Retrieved from cancer.gov/cancertopics/pdq/supportivecare/communication/patient on June 27, 2012.
  • Nigolian, C. J., & Miller, K. L. (2011). Teaching Essential Skills to Family Caregivers. American Journal of Nursing, 111(11), 52-58.
  • Thorne, S., Oliffe, J. L., & Stajduhar, K. I. (2012). Communicating Shared Decision-Making: Cancer Patient Perspectives. Patient Education and Counseling. DOI: 10.1016/j.pec.2012.02.018.
  • Whitlach, C. (2008). Informal Caregivers' Communication and Decision Making. American Journal of Nursing, 108(9), 73-77.

Talking with Healthcare Providers

Family Meetings

Helping from a Distance

  • Berger, L. (2009). Long-Distance Caregiving: A Growing Phenomenon. Today's Caregiver, 30-32.
  • Bevan, J. L., & Sparks, L. (2011). Communication in the Context of Long-Distance Family Caregiving: An Integrated Review and Practical Applications. Patient Education and Counseling, 85(1), 26-30.
  • Bradley, J. (2011). Long-Distance Caregiving: Assessing Needs. Today's Caregiver, 24-27.
  • Lewis L. (2008). Long-Distance Caregiving. Am J Nurs. 108(9 Suppl):49. PMID: 18797227.
  • Yedidia MJ, Tiedemann A. (2008) How Do Family Caregivers Describe Their Needs for Professional Help? Am J Nurs. 108(9 Suppl):35-7. PMID: 18797222.
  • Caring from a Distance (www.cfad.org)
  • Caring for Aging Parents (www.caring.com/)

Making Things Happen

Medication Management

Money

  • AARP.org. Caregiving Resource Center: Sources of Financial Help. Retrieved from www.aarp.org/relationships/caregiving-resource-center/info-08-2010/lfm-s... on June 27, 2012.
  • Ask Medicare. Tips and Resources for Caregivers. Is Additional Financial Support Available? Retrieved from www.medicare.gov/caregivers/SharedResources/shared/pdf/CMS_FinancialSupp... on June 28, 2012.
  • Cancer Care (2007). Financial Help for People with Cancer. Cancer Care Assist.
  • National Cancer Institute (2007). Financial Assistance and Other Resources for People with Cancer. National Cancer Institute.
  • Health Plan of New York & National Alliance for Caregiving (2005). Care for the Family Caregiver: A Place to Start. The White House Conference on Aging December 2005.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.

Work

  • AARP.org (2010). Balancing Work and Caregiving. Retrieved from www.aarp.org/relationships/caregiving-resource-center/info-08-2010/pc_ba... on June 28, 2012.
  • Gordon, J. R., Pruchno, R. A., Wilson-Genderson, M., Murphy, W. M., & Rose, M. (2012). Balancing Caregiving and Work: Role Conflict & Role Strain Dynamics. Journal of Family Issues, 33(5), 662-689.
  • McDaniel, K. R, & Allen, D. G. (2012). Working and Caregiving: The Impact on Caregiver Stress, Family-Work Conflict, & Burnout. Journal of Life Care Planning, 10(4), 21-32.
  • Neal, M.B. & Wagner, D.L. (n.d.) Issues, Challenges, and Opportunities for the Aging Network. Retrieved from www.caregiverslibrary.org/Portals/0/Working%20Caregivers%20-%20Issues%20... on June 29, 2012.
  • Teschendorf, B., Schwartz, C., Ferrans, C. E., O'Mara, A., Novotny, P., & Sloan, J. (2007). Caregiver Role Stress: When Families Become Providers. Cancer Control, 14(2), 183-189.

Transportation

Emergency Preparedness

Coping with Caregiving

Anger

  • Gold, Marla. When Your Loved One Isn't Very Lovable. Retrieved from www.thefamilycaregiver.org/pdfs/LovedOneIsNotLovable.pdf on June 29, 2012.
  • Macneil, G., Kosberg, J. I., Durkin, D. W., Dooley, W. K., Decoster, J., & Williams, G. M. (2010). Caregiver Mental Health and Potentially Harmful Caregiving Behavior: The Central Role of Caregiver Anger. Gerontologist, 50(1), 76-86.
  • U.S. Department of Health and Human Resources (2005). Support for Caregivers: When Someone You Love Is Being Treated for Cancer. National Institutes of Health.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.
  • Washington State Department of Social and Health Services (2006). Your Mental Health. National Caregivers Library. (www.caregiverslibrary.org/)

Anxiety

  • American Cancer Society (www.cancer.org)
  • Eaton, L.H. & Tipton, J.M. (2009). Anxiety. In L.H. Eaton & J.M. Tipton (Eds.). Putting Evidence into Practice: Improving Oncology Patient Outcomes (pp. 25-36). Pittsburg: Oncology Nursing Society.
  • Lambert, S. D., Girgis, A., Lecathelinais, C., & Stacey, F. (2012). Walking a Mile in Their Shoes: Anxiety and Depression Among Partners and Caregivers of Cancer Survivors at 6 and 12 Months Post-Diagnosis. Supportive Care in Cancer. DOI: 10.1007/s00520-012-1495-7.
  • Madden, J. (2006). The Problem of Distress in Patients with Cancer: More Effective Assessment. Clinical Journal Of Oncology Nursing, 10, 615-619.
  • National Cancer Institute. (www.cancer.gov)
  • National Coalition of Cancer Survivorship. (canceradvocacy.org)
  • Sheldon, L.K., Swanson, S., Dolce, A., Marsh, K. & Summers, J. (2008). Putting Evidence Into Practice: Evidence-Based Interventions for Anxiety. Clinical Journal of Oncology Nursing, 12(5), 789-797.

Depression

  • Eaton, L.H. & Tipton, J.M. (2009). Depression. In L.H. Eaton & J.M. Tipton (Eds.), Putting Evidence Into Practice: Improving Oncology Patient Outcomes (pp. 105-118). Pittsburg: Oncology Nursing Society.
  • Fulcher, C. (2006). Depression Management During Cancer Treatment. Oncology Nursing Forum, (33) 1, 33-35.
  • Given, B. & Sherwood, P.R. (2006). Family Care for the Older Person Who Has Cancer. Seminars in Oncology Nursing, 22(1), 43-50.
  • Mittelman, M. (2005). Taking Care of the Caregivers. Current OpinionPsychiatry, 18(6), 633-639.
  • Heidari, G. M., Bouzar, Z., Haghshenas, M., Kasaeeyan, A. A., Sadeghi, M. R., & Didehdar, A. M. (2012). Quality of Life and Depression in Caregivers of Patients with Breast Cancer. BMC Research Notes, 5(11), 310.
  • Mittelman, M. (2005). Taking Care of the Caregivers. Current Opinion Psychiatry, 18(6), 633-639.
  • National Cancer Institute. (www.cancer.gov)
  • National Coalition of Cancer Survivorship. (www.canceradvocacy.org)
  • O'Brien, T. (2006). The Stress of Family Caregiving: Your Health May Be at Risk. Take Care! Caregiver Action Network. Retrieved from www.thefamilycaregiver.org/pdfs/CaregiverStress.pdf on July 2, 2012.
  • Schumacher, K., Beck, C.A. & Marren, J.M. (2006). Family Caregivers: Caring for Older Adults, Working with Their Families. American Journal of Nursing, 106(8), 40-49.
  • U.S. Department of Health and Human Services (2006). Support for Caregivers: When Someone You Love Has Advanced Cancer. National Cancer Institute.
  • Van Fleet, S. (2006). Assessment and Pharmacotherapy of Depression. Clinical Journal of Oncology Nursing, (10) 2, 158-161.

Fatigue

  • American Society of Clinical Oncology (2008). Making a World of Difference in Cancer Care. Retrieved from: www.plwc.org.
  • Beck, S., Dudley, W., & Barsevick, A. (2005). Pain, Sleep Disturbance, and Fatigue in Patients with Cancer: Using a Mediation Model to Test a Symptom Cluster. Oncology Nursing Forum, 32(3), E48-E55.
  • Dwyer, K. (2007). Fighting Caregiver Fatigue. Caregiver.com: Today's Caregiver magazine.
  • Mitchell, S.A., Beck, S.L., Hood, L.E., Moore, K. & Tanner, E.R. (2007). Putting Evidence into Practice: Evidence-Based Interventions for Tatigue During and Following Cancer and Its Treatment. Clinical Journal of Oncology Nursing, 11(1), 99-113.
  • National Cancer Institute. (2012). Fatigue (PDQ). Retrieved from www.cancer.gov/cancertopics/pdq/supportivecare/fatigue/HealthProfessional.
  • National Coalition for Cancer Survivorship. Fatigue At: www.canceradvocacy.org. Click On Essential Care.    

Fear & Uncertainty

  • Clayton, M.F., Mishel, M.H. & Belyea, M. (2006). Testing a Model of Symptoms, Communication, Uncertainty, and Well-Being, in Older Breast Cancer Survivors. Research in Nursing & Health, 29, 18-39.
  • Gil, K., Mishel, M., Germino, B., Porter, L., Laney, I. & Belyea, M. (2005). Uncertainty Management Intervention for Older African American and Caucasian Long-Term Breast Cancer Survivors. Journal of Psychosocial Oncology, 23, 3-21.
  • Herbert, R. S., Schulz, R., Valire, C. C., & Arnold, R. M. (2009). Preparing Family Caregivers for Death and Bereavement. Insights From Caregivers of Terminally Ill Patients. Journal of Pain and Symptom Management, 37(1), 3-12.
  • Lower Mainland Assessment & Referral Service (n.d.). Dealing with Life Uncertainty: Seven Strategies for Success. Lower Mainland Assessment & Referral Service (EFAP/ARS). Retrieved from www.lmars.com/strategies_for_success.htm on June 29, 2012.
  • Mishel, M. H., Germino, B. B., Gil, K. M., Belvea, M., LaNev, I. C., Stewart, J., et al. (2005). Benefits from an Uncertainty Management Intervention for African-American and Caucasian Older Long-Term Breast Cancer Survivors. Psycho-Oncology, 14(11), 962-978.

Loneliness & Isolation

  • AARP.org. (2012). Caregiving Resource Center: Caring for Yourself During Caregiving. Retrieved from www.aarp.org/home-family/caregiving/info-05-2012/caring-for-yourself-dur... on June 28, 2012.
  • National Cancer Institute. (2011). Caring for the Caregiver: Caring for Yourself. Retrieved from cancer.gov/cancertopics/coping/caring-for-the-caregiver/page4 on June 28, 2012.
  • Net of Care (n.d.) Your Needs: Social Needs. Net of Care. Retrieved from www.netofcare.org/content/your_needs/social_needs.asp on July 2, 2012.
  • Robinson, J., Fortinsky, R., Kleppinger, A., Shugrue, N., & Porter, M. (2009). A Broader View of Family Caregiving: Effects of Caregiving and Caregiver Conditions on Depressive Symptoms, Heath, Work, and Social isolation. Journals of Gerontology Series B: Psychological Sciences & Social Sciences, 64B(6), 788-798.

Sleep Problems

  • Berger, A., Parker, K., Mccaughan, S., Mallory, G., Barsevidk, A., & Beck, S., et al. (2005). Sleep/Wake Disturbance in People with Cancer and Their Caregivers: State of the Science. Oncology Nursing Forum, 32(6), 98-126.
  • Carter, P.A., & Clark, A. P. (2005). Assessing and Treating Sleep Problems in Family Caregivers of Intensive Care Unit Patients. Critical Care Nurse, 25(1), 16-25.
  • Carter, P. A. (2006). A Brief Behavioral Sleep Intervention for Family Caregivers of Persons with Cancer. Cancer Nursing, 29(2), 95-103.
  • Eaton LH & Tipton JM. (2009). Sleep-Wake Disturbances. In LH Eaton & JM Tipton (Eds), Putting Evidence Into Practice: Improving Oncology Patient Outcomes (pp. 285-297). Pittsburgh: Oncology Nursing Society.
  • Garci, G. (2005). Pathogenesis and Management of Cancer-Related Insomnia. Journal of Supportive Oncology, 3(5), 349-358.
  • Kvale, E. & Shuster, J. (2006). Sleep Disturbance in Supportive Cancer Care: A Review. Journal of Palliative Medicine, 9(2), 437-450.
This website was created to provide information, education, and support that will help cancer caregivers care for themselves and their family members. It is not meant as medical advice. Please check with your physician for any advice about your health.